At one time the diagnosis of cancer, AIDS or COPD was a death sentence. Advances in medicine and treatment now sometimes place patients with these diseases in a chronic rather than acute condition, leaving the caregiver with a sense of on-going sadness, or anticipatory grief.
Anticipation in this context refers to the anticipation of an event in the future. Barring a miracle, the caregiver has a sure knowledge that death will occur in our loved one sooner rather than later. In anticipation of eventual death, the caregiver changes her focus from the hopes of a miracle cure to ensuring comfort and quality at lifes end.
Many of the caregivers I have worked with not only mourn the anticipation of death of a loved one, but also the end of their role in life. They are afraid of who they will become when they no longer bear the title of wife, daughter or caregiver.